First of all thank you to everyone for your thoughts and prayers over the last year. We have decided to create a blog to have an outlet for anyone who is interested in updates on Lances condition a place to come and be informed. The title of the blog "A future and a hope" comes from Jeremiah 29:11, which is a verse that has given our family alot of comfort through these challenging times. Because as my Dad has said, no matter what happens we have already won! I would encourage you to pass on the location of this site to anyone that you may believe would be interested in updates. -Justin



Wednesday, October 13, 2010

A Roof Over Their Heads....










Hi everybody, this is Nicole, Lance and Penny's daughter-in-law, married to their talented, smart and handsome son, Nathan :) I was asked to contribute the back story behind how the 'Roof Over Their Heads' came about. I want to begin by saying that I absolutely ADORE Lance and Penny and I would like to credit them with setting the example to us for what a great marriage looks like. From very early on, Lance made it clear to the boys that no one (other than the Lord) would come before his bride, their mother. And it was this kind unconditional love that has really left an impression on us to this day. That being said, I not only adore Lance and Penny but I admire and respect them. So just like anyone else, Lance's diagnosis left me feeling just as lost as they did wondering 'what do we do now?' I knew it would be a big deal to be there for them but yet not to interfere too much, because even though I wanted to, this was not a journey I could complete for them. Honestly, I just prayed that in whatever way the Lord could use me to help unload any of the burdens, that I would hear Him and not mess up too much along the way!


Not long after Lance had been diagnosed (July 9th 2009), they were taking one of their weekly trips to the University of Iowa and Lance had recalled the feeling one particular day when he looked back at the roof and the damaged state it was in, that it might never be repaired. Penny was also burdened by this and she called me a couple months later in late September to let me know they were getting a quote for materials and labor and they were hopeful and asked me to pray about it. This was through Bryce Davis, whom we both knew of with another local church and he had a little girl pass away from cancer about 5 years ago. He was very nice and thorough but unfortunately it was still too much for Penny and Lance, with doctor's bills and everything else. Penny told me that with circumstances the way they were she and Lance did not have a peace about going through with having their roof redone yet, even though it was in HORRIBLE shape. They had had hail damage, some rough winters and the shingles were not holding up. So now Penny knew she had to rely on God and "let it go". She had told me that what kept her going was the fact that it wasn't leaking yet.




During this time I was feeling bad that they couldn't get the roof fixed, but also respectful of the fact that God can show Himself in many ways, little did I know that it would be through me. A few months past and we were well into the Winter months and almost upon Spring when I suddenly felt burdened by the roof. (This was actually about 2 months before they did have a real leak in their roof and God was already working His plans to make sure it would get fixed while testing their faith in Him during this time) God began speaking to me in only the way He can, giving me perspective and understanding of how bad their roof was, no longer looking at it as their problem but MY problem. I could not stop envisioning the roof collapsing and leaking and the worst of it was seeing Lance (at that time he was going through his ITP diagnosis at the U of I) being in his safe haven of home, without a roof. Yes, my imagination was a bit extreme but like I said God hit me where He knew I would be the most impacted. Of course I had to do something but that sick feeling in the pit of my stomach told me I couldn't do it and I wasn't good enough to do it -- you know, all those doubts you feel before doing something REALLY big :)

I knew I would have to raise the funds (not knowing how much that would be) and find someone who would be willing to work for the cost of materials which seemed like a lot to ask. My plan was very unorganized and I still wasn't firmly committed to going through with it, I was still in the 'research' phase. I had gone through many attempts to get a hold of Bryce Davis and never did. Amazingly enough, I ran into him at a soccer game where his niece was playing and he approached me, finding out about my reason for trying to reach him. He gave me all of the information I needed and encouraged me to go forward with it -- I was now committed to seeing this happen.



I started talking to more people and I was amazed at everyone's responses. Our own church who obviously didn't know Penny and Lance the way we do committed to having not only a Love Offering to help raise money but also committing several guys to help with the demolition work of the roof, WOW! I was apprehensive about contacting Lance and Penny's church because I knew that they had already helped so much, but when I did, they definitely wanted to have a part in this. But even more amazingly, The Routleys (John Routley and his two sons Kory and JJ) committed to completing the entire roof ONLY for the cost of materials and without knowing if there would be anyone who would show up to help, WOW! At this stage it was just a matter of making the phone calls and gathering the necessary funds. This part was difficult because I did not want to call people who felt obligated to give but because they felt led to give. I can honestly say that everyone WANTED to help and people were thanking me whole-heartedly for calling them. Finally it came down to a big sale at Menards that signaled, "we need to get this done". Even though there was still some money coming in, I gave what I had collected thus far to Brent Fessler (who offered to pick up the shingles from Menards) and the remainder was graciously donated by the congregation of Arbor Oaks. Little did I know that God was purposely delaying some of the money for a special plan of His own.



In late September of this year (Wow, almost one year later!) the date to start the roof was set for October 8th. So with with the project a couple weeks away, I made sure to get the rest of the money needed. People were getting excited for us and Lance, Penny and myself were all getting nervous (for different reasons). I was nervous about the weather and that there would be enough help. Penny was nervous that her house was clean enough :) and that she wanted to be where she was needed when everything was going on. Lance was also nervous about finding his place in all of this. For as thankful and appreciative as he was, he didn't know if he should be outside watching and talking to people assuming that they would be wondering why he wasn't up there helping or inside, ignoring them -- a tough place for a man who doesn't sit on this side of service projects very much. Like I said before, God was already working out His plans through the many prayers of others. People had even approached Penny and Lance at this time knowing the anxiety they must have been feeling through it all, letting them know that their prayers were with them. Five days before the roof project I had contacted Brent Fessler at Arbor Oaks Bible Church (where Penny and Lance attend) to let him know that I had more money that had come in that I needed to get to him. He said that he wanted to see that money go to Penny and Lance to meet any other needs that they may have. To those of us involved with the project it was clear that Penny and Lance should be able to get away if at all possible and now it was possible! This was not in our plans from the beginning, but it was definitely in God's! The prefect place and location was found for Penny and Lance to get away - The Decker Hotel in Maquoketa, IA (half an hour away). A beautiful full service bed and breakfast style hotel. There was even enough left over so that they could really enjoy the time away!



As for my worries and concerns about the weather and enough help -- WOW! We had 20+ men and several women helped bring meals, snacks and drinks. The weather forecast called for "abundant sunshine" and the temperatures were nearing 80 just before they finished on Saturday. Even more amazing was that the project took roughly 5 hours of manpower from beginning to end. Everyone was in good spirits, laughing, joking and pitching in wherever they could. Watching the two church families work together with Lance's 4 kids was another brilliant scheme that God had on the back burner showing the great unity and respect brought together by the commonality that was shared among them -- Lance and Penny.




Now I'm sure I've missed a few details along this journey and I was also planning on sharing the thank-you note that was given to the two churches but I'm sure I've run out of time and ink :) Thanks for seeing this through to the end. For everyone who helped out in some way or another I personally, can never thank you enough and I know Lance and Penny share the same sentiments :) Take care!



Nicole Hall



Thursday, September 30, 2010

Update

Just a update from todays labs... The platelets are holding so the doctors are happy they haven't dropped anymore! So Lance will go in Monday to have them checked again, as they are still lower than they should be, so they have to keep a close eye on them. Thank you for all your prayers!! Please pray they start going up to where they need to be and like Lance mentioned before wisdom for the doctors. We take comfort in realizing it is GOD!!! who is really in control not the disease, us ,or the doctors! Having said that, we are thankful for such good, caring doctors! ---Penny

Monday, September 27, 2010

Fun Pictures

Hey everyone! Just thought I'd share a few pics of what we've been up to lately! These pictures are a few weeks old now but we still thought it would be fun to post some!!

Elisabeth posted the pictures this morning while we were in Iowa City and I thought I'd just add to her post what happened today. I saw Dr. Jamieson and they are kind of unsure what to do with me, after the transplant was delayed due to the infections, (which are getting better) they are now concerned with moving ahead with the transplant because I have some risk factors that they are scared of. Apparently my having a three way translocation of cells is very rare and they do not have enough experience with it to feel comfortable moving ahead at this time, It is also the reason they want to move ahead. (Thats a very simplified version of what they call a very complicated problem)They are going to wait another month and then do another Bone Marrow biopsy to see where I am at. They may very well change there minds in a month basically they are afraid to go ahead and afraid to wait so the safer thing is to wait and just get me healthier so if they go ahead I will have the best chance for success. If you would pray for the Drs. I would appreciate it they are a little stumped, In addition my platlet count has fallen and in my Drs. words "I think ITP is rearing its ugly head again" so I will be going in for many blood tests I'll go back Thursday and Monday and then at least weekly until it gets better, ITP is what I was hospitalized for last time it is when your immune system attacks your platlets (which clot your blood). So you could also pray that won't happen. On the bright side Elisabeth had her best swim meet of the year last week she had good times and it was fun for her (it has been a struggle for her to relax with all that is going on at our house) she has a meet tomorow night in Cedar Rapids so we are hoping she will do well again. She works Very Hard and its good to be rewarded with time drops. We are hoping Rex can get Linda out of the house to come and watch that is always a treat for all of us. (Love ya Linda) Have a good day.

Lance

Filling up my car tire! :)




Getting the bikes ready for us to ride


My team is wearing the blue









Thursday, September 16, 2010

Dragon Boats

We haven't posted in a while mainly just because there isn't much to write about. I go in for blood work every week and nothing has changed . We had fun last weekend Elisabeths swim team had a Dragon boat race on the Mississippi her boat made up of the Varsity won 1st place. It was a beautiful day to sit by the river and watch what was going on. Dragon Boats are like giant canoes with a dragon figure carved on the front, there are (I think) 18 paddlers and they have to synchronize their paddling while one person drums a cadance and another lays across the bow and pulls a flag out of a platform to stop the clock. They race about a quarter mile down the river, It was fun and the girls really have a good time together. Teams come from all over Canada etc. and they are in different divisions elite, high school etc. Elisabeth will post some pictures when she has a chance she is really busy right now swimming many hours every day, she is battling a bad cold and it wears her out but doesn't slow her down. Penny has been working hard around the house trying to get things done before I go in the hospital, I sit around and watch (lifes good) Saturday morning we are going to watch Gavin (our Grandson) play football for the YMCA he is 7 and runs like Adrian Peterson. We will write more soon.
Lance

Thursday, September 2, 2010

God's Timing

Today was suppose to be the day Lance was to go to the hospital to start Chemo for the transplant...... After our appointment Monday, I realized even more how God's timing isn't ours(or the doctors) and He knows what is best. During this time of delay because of the fungal infection, they have noticed more unusual things about Lance's case, Which makes them very cautious in going forward to transplant and also nervous about waiting........ not a really good option either way right now. But even though things SEEM uncertain and no one knows for sure the right answer we trust that God does. ----Penny

Be still, and know that I am God; I will be exalted among the nations, I will be exalted in the earth! --Psalm 46:10

Tuesday, August 31, 2010

Delays

Yesterday, Monday we went back to Iowa City to see Dr. Jamieson and it seems that the infection they are so worried about is getting a lot better but not gone. So they are going to wait a while and see what happens. They received most of the results back from my last Bone Marrow Biopsy and it shows that the new drugs I'm on are just kind of holding things in place. They were hoping to see a drop in my Leukemia but at this point that is not happening, on the bright side it is not really getting worse either. I have now been on Dasatinab for 4 months and the rule is 6 months before they rule it as a failure, and since they have to wait another month due to the infection they are going to wait the full 6 months before rescheduling a transplant ( which is actually 2 more months from now so either late Octorber or early November before they make anymore decisions ). My Drs. said that they are 90% sure the drug won't work, but as long as there is a chance, and we will be so close anyway they think it would be wise to just wait. I will go in weekly so they can monitor my blood, they seem comfortable that nothing should get away from them in a week so it will be safe to wait. Dr. Jamison said they would need to see a miraculous amount of change for me to not need a transplant but we know Miracles can and do happen so if thats Gods will it will, Thanks for caring we continue to thank God for his Love and find comfort in knowing it is all in his hands.
Lance

Sunday, August 29, 2010

New Groupie???

Well last night Lance went to his first Ten Avenue North concert. I think that secretly while he was teasing Elisabeth about being a groupie, that he really wanted to go! There was a free concert and Lance REALLY wanted to do something special for and with Elisabeth before he went into the hospital, it was a great night. We picked up Elisabeth's friend Christina to go with, then stopped to see Justin, Ashley and Dillan on our way and had so much fun seeing them and just watching Dillan. She is a show herself!! We visited and they made us a delicious lunch and Lance and Dillan got a nap before we left for the concert.

Tomorrow we head to Iowa City for an appointment and to get all the bone marrow test results. Thank you all for your love, prayers and support. God is faithful!

Monday, August 16, 2010

Transplant delayed.

Hi- Just a quick update I went to Iowa City today and met with Dr. Jamison and she decided that we need to postpone my transplant most likely for at least a month. I have a fungal infection that is quite common among Leukemia patients and it is just not responding very fast to the drugs that I have been on. They switched the drug two weeks ago and it looks like the new drug is working but it has a way to go before it will be safe to do the transplant. Dr. Jamison said that the leading cause of death during transplant is from this infection because once they kill my immune system it will just take over, they can't put me on some of the drugs they normally use because they interact badly with the medicine I take to keep my cancer in check so the best option right now is just to stay the course with the drug I am currently on. After that discussion she had me go in for a Bone Marrow biopsy just to see where the Leukemia is, it will take 7-10 days for the results of that test. Should it come back that I am showing too many blast cells or that the Leukemia is growing too fast, then they will go to transplant regardless because at that point it will be less risky than waiting. All in all she says it is not uncommon for this to happen and for delays to take place. I am grateful that they are so careful but a little disappointed at the same time we are ready to move on. Dr. Jamison said that I have had a very uncommon case from day one Penny says thats because I want to win at everything even being uncommon.
Elisabeth spent the day today at Devils Lake in Wisconsin hiking and swimming with the girls on the swim team, she had a really good day lots of fun. One good thing about all the delays in my treatments are she is about to start her senior season and I thought I would miss all her meets, I should be able to see quite a few now and am excited about that. Thanks to everyone for all your thoughts and prayers I really appreciate the support.
Lance

Sunday, August 15, 2010

Triathalon

We had a fun morning today. Elisabeth was in a Triathalon she swam a 400, biked 12 miles and ran a 5k she did really well came in 4th place in her age group. Most of the Varsity girls from her swim team participated it was open to all the kids in the city and families. We attached a few pictures below, Penny also wrote under the pictures about tomorrow.









Got a call from Iowa City this week, they will wait to make any decisions concerning Lance's medicines and the timing of the transplant till after they get the results from his bone marrow biopsy which he has tomorrow. Don't know how long it will take to get the final results on that. He was suppose to go off his cancer medicine tomorrow in order to be ready to start the chemo for the transplant on Sept. 2, so we'll see what they decide...... Please pray for us tomorrow as we travel, that they give Lance LOTS of good drugs for the biopsy( it is not a fun thing to have done), wisdom for the doctors, and a clear calm mind for me so I can ask the right questions and remember all the details! It can get a bit overwhelming at times.....

Friday, August 6, 2010

Trusting God's timing

Quick update, Lance went to Iowa City yesterday to meet with the dermatologist. His rashes are getting worse again after pretty much clearing up a few weeks ago. Anyway he has become resistent to the drugs so they are not working anymore. His last blood work a week ago also showed that his infection fighting cells in his blood are really low again....... The doctors are trying to figure out what to do because of all the reactions between the drugs he is on and not wanting to delay the transplant anymore, but not wanting to put him at higher risk than necessary. Please pray for wisdom for all the doctors and for protection and healing for Lance. The meds. he is on are all hard on the liver, and can bring down his blood counts along with some other things but are also needed to fight the cancer and infections.......

Yesterday kind of felt like we were back at square one again, but even though we don't understand all the up and downs, the starts, stops, and waits.... Trusting that God does! Thank you all for praying! -----Penny