Friday, December 31, 2010
Thursday, December 30, 2010
Well, the steroids have offically set in!!! Dad spent most of today (in between naps) trying to convince me that I was Swedish so I needed give him a Swedish massage. After explaining that I didn't know what this was he spent most of the afternoon searching video's on youtube on how to give a massage which he then proceded to show me! Apparently he read in the readers digest that a swedish massage helps imporve your immune system and we all know that the readers digest doesn't lie! :) Anyways dad felt pretty good today, we always know that he's feeling a little better when he starts teasing again! I guess mom and I are going to have to start watching out for him! I posted a few pics below of what else he's been up to! ~Elisabeth
Dad working on his puzzle
Wednesday, December 29, 2010
Monday, December 27, 2010
Saturday, December 25, 2010
Well we've had a pretty quite Christmas just the three of us this year, but still a very good day! Dad was pretty tired today so he took lots of naps but we were able to get out for a little bit and take a walk. It snowed all day yesterday and it was so pretty outside today that I posted a few pics below that I took today on our walk! Merry Christmas everyone!
Friday, December 24, 2010
Wednesday, December 22, 2010
Tuesday, December 21, 2010
Monday, December 20, 2010
Sunday, December 19, 2010
Friday, December 17, 2010
Hello again! Well were very excited because they came in today and let us know that dad is offically going to be able to leave the hospital on Monday!! They would like us to stay at my grandparents house for a few days though so we can stay closer to the hospital and becuase dad will have to come back to the hospital on Wednesday for a checkup. We're excited to have a plan for when we get to go home! Not that this whole staying in the hospital thing isn't nice but ya know dad is starting to miss Stuart! :) Anyways things are going well here, dad got off of his IV pole today so thats really nice! He's been having to pull that thing around for over three weeks so he's pretty happy to be off of that! His Segs went down a little bit today so if you could pray that they will go back up we'd really appreciate it! Well I think that's everything, I posted a few pics below so you can see what's been going on up here to! ~Elisabeth
I'm free no more IV pole!!!
If you can't tell what dad is doing here he's trying to pull the remainder of his hair out with masking tape! Don't ask me were he got this idea from. The weird thing is it actually worked!!!
Thursday, December 16, 2010
Wednesday, December 15, 2010
Doctor is predicting Lance will get to go home Monday or Tuesday, the nurses came in this morning and thought it might be sooner but he still has four pumps hooked up so we'll see. Eating is still kind of a problem but hopefully will get better each day. As of right now Lance is the veteran on the floor! Our friend Theresa who we have been praying for had been here four days longer than Lance and she got to go home today! Praying for her and her husband and there two little boys. Lance's white count continues to drop a little each day but that is to be expected since he isn't getting those shots anymore for now. Well tonight was BINGO night, didn't win but it helped pass time and it is so much fun to watch the lady who does it. All in all a good day! Thank you for all your prayers!! ---Penny
Tuesday, December 14, 2010
Monday, December 13, 2010
Sunday, December 12, 2010
Saturday, December 11, 2010
Friday, December 10, 2010
We have been listening to a cd our church family did for us.... We are so thankful for all their love and support. We listen a little at a time to encouraging verses, jokes, songs, poems...... just hearing all our friends voices encouraging us is just awesome!! What a great idea. How blessed we feel to read emails, comments on the blog and to see the mail lady come each morning!! Thank you all!!!
So many people going through so much up here, we pray for them all and many are praying for us. Lance always has a smile and something nice to say to each one. I'm so proud of him, he has had such a great attitude!! Funny thing happen this afternoon, we are always looking for a good laugh.....anyway one of the nurses came in with a pack of toilet paper a gift from a patients family to each room here.....SOFT TOILET PAPER!!! Isn't that great!! One of life little pleasures! GOD IS GOOD!!! ---Penny
Thursday, December 9, 2010
Wednesday, December 8, 2010
Guess what today's side effect was????
Tuesday, December 7, 2010
Hello again! Sorry for the gap in posting pics but I've been kind of busy lately! Anyways....here is some pics of whats been happening up here in the last week!
This is dad's transplant certificate that the nurses gave him. They also told him that he now has two birthday's I thought it was quite funny though because the 30th just happend to be Stuart's b-day also! :)
Here is dad's new IV pole. It's HUGE!!!
Monday, December 6, 2010
Sunday, December 5, 2010
Friday, December 3, 2010
c/o UI Hospitals and Clinics
200 Hawkins Drive
Iowa City, IA 52242
P.S. Do to the overwhelming requests from most of my friends Dr. Heckmann has informed me he can no longer write prescriptions for Kisses he's just been inundated. (Really Quit Calling!)
Thursday, December 2, 2010
Such an encouragement especially since they started Lance on what they call "Steak In a Bag" (IV nutrition) tonight since eating is not working anymore.
Wednesday, December 1, 2010
Tuesday, November 30, 2010
Monday, November 29, 2010
Well Nathan is all done giving his stem cells so I thought I would post a few pictures of the process that he went through this morning. Enjoy! :) Elisabeth
As for Lance he had a rough night, up most of it with face and jaw pain and then a bad headache. There was talk for awhile of a CAT scan but the doctor decided that it is a side effect from the one chemo... Not a common one but then again when has Lance ever been common! He did learn a hard lesson in telling the nurse when he has a little pain before it turns into A LOT of pain....... The hockey player in him just doesn't relate to that to well..... He has been sleeping most of the day so far today which is exactly what he needs! They have some pretty good pain meds. up here (once you tell them you hurt!).
Thanks to everyone for your continued love and prayers! God is good!-----Penny
Sunday, November 28, 2010
Saturday, November 27, 2010
(Be sure and check out the next post Nicole and I were doing them at the same time)
This is just a quick update about Nathan -- I know many have asked how he is doing so we wanted to let you know. Just as a disclaimer by Nathan, his complaints pale in comparison of the long road his Dad has to conquer and so with that in mind he shrugs off any sort of discomfort. Nathan started his shots 3 days ago on Thanksgiving morning. We were blessed to have the guidance and assistance of a wonderful couple who have have taken this same journey -- Matt and Sam (oops, forgot their last name, sorry guys!!). Matt was a donor about 5 years ago to his brother so he was able to share some of his personal experience with Nathan. Sam has also been fortunate enough for us, to have vast experience as a Physician's Assisant. They were SO kind to make a stop off at our house before going on about their Thanksgiving plans that day -- they even made it a point to stay in the area for the holidays knowing that Nathan would be taking his shots. (Interesting tidbit: Matt started his shots on Easter Sunday and Nathan on Thanksgiving!) We realized how helpful they were when Sam knew what to do when we got air into the needle syringe, she is such a pro and we are such amateurs! SO very thankful for their help on Thanksgiving!
Nathan has been feeling VERY sore, although he won't admit it to anyone else, it is more pain than he thought there would have been, but ABSOLUTELY WORTH IT IN EVERY WAY!!! Much of his soreness and achiness has been in his skull, jaw and hip bones (we are guessing these are the largest producers of stem sells maybe) and hopefully with all of the pain he is experiencing, it will be a sign that he will donate the largest amount of stem cells they have ever seen (okay so we are a little competetive :) in everything!) lol! Only two more days and then it's donation day and the first day on Lance's new life with Nathan's stem cells, Nathan's new blood type and Nathan's allergies that Lance never had before (yes, a possible side effect!) We all can't wait, what an exciting transformation!! God is GOOD!! Take care everyone and hope to see some of you tomorrow in Iowa City to celebrate little Hayden's 2nd birthday! Yea!!
Friday, November 26, 2010
Meet are new friend Imani , She is an African Refuge who works in the Foodservice at University of Iowa Hospitals. She has had a hard story but you'd never know it her face lights up a room. Last night she came into our room and asked if she could pray for me and that her whole Church is. She then same some Hymns for us in French and Swaheli, God brings many special people into our lives.
Thursday, November 25, 2010
Wednesday, November 24, 2010
Hello everyone! Just wanted to post a couple pictures of what dad did today!
There is a story behind this note. My mom wouldn't kiss my dad because she was afraid of giving him any germs. Now my dad wasn't going to take this so of course he went to the top! He got a doctor to actually write a prescription that says ,"Patient should get a kiss from his wife as needed!" Typical dad! Needless to say he got his kiss! :)
Tuesday, November 23, 2010
Thursday, November 18, 2010
Monday, November 15, 2010
Wednesday, November 10, 2010
Bone marrow is the home to special cells called hemopoietic (blood-forming) stem cells, which work continuously to make new blood cells. Normally , a small fraction of these stem cells leave the bone marrow and circulate the bloodstream. If they filter the donor's blood, (which in our case is going to be our oldest son Nathan!! All three of our boys were perfect matches for Lance ,a huge miracle!!) they can collect his stem cells for transplant. By giving Nathan several injections of a medication before the collection, they can increase the number of stem cells in the circulation by 50 to 100 fold. They use this method 90% of the time now, rather than having to do surgery on Nathan and go in and take the stem cells from his bone marrow. It is easier on the donor! Although Nathan was very willing (as were all the boys) to do which ever one the doctors wanted for Lance. Thank You Guys!!
Lance will be admitted to the hospital on Nov. 23, if everything stays on schedule. He will get a PICC line again, and start chemotherapy, It is very high dose and will be for 6 days, they give him a one day break and then the next day is transplant day --Nov.30th! The transplant is given as a transfusion, similar to a blood transfusion. This day is considered Day 0. A neat side note is that the stem cells know that they belong in the bone marrow so find their way there, the doctor says they call it homing. Isn't it amazing the way God created our bodies!
It takes about 2-3 weeks after the transplant to begin making the normal bone marrow and blood cells that you need. "Engraftment" is when the donor's cells grow, and become normal functioning blood cells in Lance. During this time, they will watch Lance carefully for infection and other complications. He will get antibiotics and other drugs to help prevent and treat side effects and infections. He will receive blood and platelets transfusions. And most need IV nutrition for awhile. They tell us that the average hospital stay is 4-6 weeks although some do go home in 3-4. They also tell us that pretty much everyone ends up back in the hospital a time or two over the next few months. He will be taking lots of medicines for months to help him fight infections while his new immune system gets stronger..
There is risk of damage from the Chemo, then there is the risk of infection and probably one of the biggest risk is Graft vs. Host disease. This is where they want Lance's new immune system to fight and get rid of any cancer that might be left and to take over and give Lance a new immune system but they don't want it to get out of control and attack his body. I won't go into all the possible risk, the list is overwhelming, BUT this is also a chance for a cure! And the drugs are not working so it is a chance for life! They tell us that people don't even talk about Normal life again till at least a year out from transplant...... Lance is praying that he will beat those odds and he wants to get back to work as soon as possilble, doctors tell us that a few go back part time 4-6 months out from transplant... but most take longer... Praying to beat those odds too!
Please also pray for protection for Lance during all the chemo, transplant and after. Protection from organ damage, infections and the graft vs. host disease.
We are so thankful to our family and friends for all your love and support this past year. We are so thankful for all the prayers.... People we have never even seen are praying for us all over the world! Thank you!
Thursday, November 4, 2010
On Wednesday this coming week I will go in for an echocardiogram to make sure my Heart is in good condition and then we will attend a class for a couple of hours that will better explain the transplant procedure. Nathan will go down for Blood work and a physical soon.
I feel a sense of relief that we have a plan and am looking forward to getting better, I am very comfortable with the direction we are going and feel at peace that whatever the outcome is, it is in Gods hands and where else would I want to be.
Thanks for Praying
Friday, October 29, 2010
Haven't posted in a while just didn't have much to say, we took a trip to Iowa City on Monday and I had some Bone Marrow biopsies we will go back on Wednesday next week to find out the results . Justin is going with us ( He likes to look out for me ) and they should hopefully have some difinitive answers on whether to proceed with my drugs or reschedule the transplant. This biopsy is where they decide if the drug has failed or if it is working and to what extent it is working. I feel good so hopefully they will tell us something positive.
Elisabeth has regionals on Saturday in Cedar Falls she is swimming the 100 Backstroke and the 200 Individual Medley, She has worked very hard so keep her in your thoughts, this could be her last High School Swim. Swimming has been a huge part of her life so we will all miss it. She will swim for the Y swim team after the High School season ends just for fun but will sure miss the other.
Hope all is well with everyone out there. Thanks to everyone for all your prayers.
Friday, October 22, 2010
Now here is the blog I had started a couple days ago but forgot to post......
"Therefore will the Lord wait, that He may be gracious unto you." (Isaiah 30:18)
I read that verse the morning our roof was being finished. Realized we had started praying about the roof situation over two years ago. The roof did SEEM like a long wait, but Oh how sweet and gracious is the Lords way!! God's ways are so worth waiting for! So much better than anything we could have ever thought of.... ... Lance and I want to THANK EVERYONE involved! We had no idea what was going on all the months that we were praying. We found out not long ago that it was suppose to be done during Lance's transplant as a surprise. When that got delayed they ended up having to tell us. Nicole had given us an encouraging card to read on the way to the hotel it was signed: From Everybody and most of all GOD!! We do thank God!! We are so thankful for all the love shown to us in so manys, feel just like God is giving us a great big hug saying "TRUST ME"! In the midst of what seems like an uncertain time with Lance's health....... God is showing us once again that HE is in Control...... to keep Trusting Him!
Now for an update. Lance's platelets are up a little this week!! Not what the doctors want yet, but going in the right direction!! We head to Iowa City on Monday. Lance will have another bone marrow biopsy........ Please pray for him.... It will take at least two weeks to get the results so more waiting..... Please pray for wisdom for the doctors and that the test will help them to have clear direction and unity for his future treatment.
Wednesday, October 13, 2010
Thursday, September 30, 2010
Monday, September 27, 2010
Hey everyone! Just thought I'd share a few pics of what we've been up to lately! These pictures are a few weeks old now but we still thought it would be fun to post some!!
Elisabeth posted the pictures this morning while we were in Iowa City and I thought I'd just add to her post what happened today. I saw Dr. Jamieson and they are kind of unsure what to do with me, after the transplant was delayed due to the infections, (which are getting better) they are now concerned with moving ahead with the transplant because I have some risk factors that they are scared of. Apparently my having a three way translocation of cells is very rare and they do not have enough experience with it to feel comfortable moving ahead at this time, It is also the reason they want to move ahead. (Thats a very simplified version of what they call a very complicated problem)They are going to wait another month and then do another Bone Marrow biopsy to see where I am at. They may very well change there minds in a month basically they are afraid to go ahead and afraid to wait so the safer thing is to wait and just get me healthier so if they go ahead I will have the best chance for success. If you would pray for the Drs. I would appreciate it they are a little stumped, In addition my platlet count has fallen and in my Drs. words "I think ITP is rearing its ugly head again" so I will be going in for many blood tests I'll go back Thursday and Monday and then at least weekly until it gets better, ITP is what I was hospitalized for last time it is when your immune system attacks your platlets (which clot your blood). So you could also pray that won't happen. On the bright side Elisabeth had her best swim meet of the year last week she had good times and it was fun for her (it has been a struggle for her to relax with all that is going on at our house) she has a meet tomorow night in Cedar Rapids so we are hoping she will do well again. She works Very Hard and its good to be rewarded with time drops. We are hoping Rex can get Linda out of the house to come and watch that is always a treat for all of us. (Love ya Linda) Have a good day.
Thursday, September 16, 2010
Thursday, September 2, 2010
Be still, and know that I am God; I will be exalted among the nations, I will be exalted in the earth! --Psalm 46:10
Tuesday, August 31, 2010
Sunday, August 29, 2010
Tomorrow we head to Iowa City for an appointment and to get all the bone marrow test results. Thank you all for your love, prayers and support. God is faithful!
Monday, August 16, 2010
Elisabeth spent the day today at Devils Lake in Wisconsin hiking and swimming with the girls on the swim team, she had a really good day lots of fun. One good thing about all the delays in my treatments are she is about to start her senior season and I thought I would miss all her meets, I should be able to see quite a few now and am excited about that. Thanks to everyone for all your thoughts and prayers I really appreciate the support.
Sunday, August 15, 2010
We had a fun morning today. Elisabeth was in a Triathalon she swam a 400, biked 12 miles and ran a 5k she did really well came in 4th place in her age group. Most of the Varsity girls from her swim team participated it was open to all the kids in the city and families. We attached a few pictures below, Penny also wrote under the pictures about tomorrow.
Got a call from Iowa City this week, they will wait to make any decisions concerning Lance's medicines and the timing of the transplant till after they get the results from his bone marrow biopsy which he has tomorrow. Don't know how long it will take to get the final results on that. He was suppose to go off his cancer medicine tomorrow in order to be ready to start the chemo for the transplant on Sept. 2, so we'll see what they decide...... Please pray for us tomorrow as we travel, that they give Lance LOTS of good drugs for the biopsy( it is not a fun thing to have done), wisdom for the doctors, and a clear calm mind for me so I can ask the right questions and remember all the details! It can get a bit overwhelming at times.....
Friday, August 6, 2010
Yesterday kind of felt like we were back at square one again, but even though we don't understand all the up and downs, the starts, stops, and waits.... Trusting that God does! Thank you all for praying! -----Penny
Saturday, July 31, 2010
P.S. Thanks to Sister Ella for letting us know the blog was broke its been nice to be back in touch.
Tuesday, July 20, 2010
This last week with having to have test in Iowa City and all that involved was a really exhausting week for Lance. As I waited for him to wake up from the meds they gave him for his test, I really struggled..... it is so hard to see him have to go through so many things.... and this was just a test....., I'm so Thankful to him for doing all of it. Years ago we used to talk about what if..... And Lance always said he wouldn't want to do chemo and all that stuff if something ever happen.... but now he wants to have a chance to live and to be with us and take care of us..... He is so good, never complains, laughs, thinks of others, working, giving of himself for us even when he is tired...
I'm reminded of Ephesians 5:25---Husbands, love your wives, just as Christ also loved the church and gave Himself up for her
As I realize how thankful I am that Lance is willing to undergo some very hard things to be with us, how much he loves us everyday in giving of himself for us (not only now, but always has). It makes me so thankful to our God!! The love we have for our husbands or wives is just a fraction of what God's love is for us.... Christ died for us!! Jesus knew what he would have to face......... yet he chose to do it for us. Don't know if it makes any sense to anyone but me!(that would not be unusual!), but watching Lance's giving of himself for us....., his love for us...., reminds me of what My Savior did for me..... SO THANKFUL..... What an Awesome God we serve.
Well next week on Wednesday the 28th, Lance goes to Iowa City to meet with the transplant doctor. He will also have a test to determine how much Chemo his heart can handle, and some lung testing. All test that they do before transplant, with more to come yet. Praying that the medicine will start working to lower the leukemia cells before transplant. Praying that he would be healed!! But as Lance has said all along, no matter what, we have already won! Thank you all for your continued prayer, and thank you Lance, love you! ------Penny
Monday, July 12, 2010
We had a great weekend with all our kids. We all went to Nathan and Nicole's house Saturday night. EVERYONE was there!! Just love that!
Lance had a bloody nose on Sunday again but it stopped pretty quick on its own, but what a scary reminder of what he went through in March...... Praying his platelets behave!
As we head to Iowa City, Elisabeth will be going to Wisconsin for a canoe trip and Stuart our athlete is going to the dog spa for a hair cut so he can see again! Life is good! ----- Penny